I have Vulvodynia 

I’m just going to come out and say it – I have Vulvodynia and it’s embarrassing to say to the world. It’s harder for me to stay silent or refer to it as a vague chronic pain condition, I need to be able to feel a purpose in the pain and for me that is found in bringing awareness and helping others. 

I was diagnosed in 2015, but I’ve been having chronic symptoms since 2011 and they hit their worst point in 2013. I say chronic symptoms since 2011, because I actually developed my first symptoms while pregnant back in 1997. For years, I just dealt with the symptoms because they didn’t impact my life dramatically. In 2011, I began to notice more symptoms, but I didn’t know what was normal for a woman’s body and I wasn’t surrounded by women I could talk to about them, so I just wrote them off as normal and to getting older. Then 2013 hit and they really began to impact my life and my marriage. Again, I wrote them off as normal until one day I was brought to my knees with pain and swelling. I finally asked some girlfriends if they ever experienced what I did and they looked at me shocked and said “no.” That is when I knew it was time to start figuring things out for myself. Thus began a two year journey of doctors appointment, blood work, and urinalysis to be told repeatedly that nothing was wrong.  

 “[Women with vulvodynia] suffer at home, in silence, and they don’t understand that the pain that they’re experiencing is not normal.” NIH Funded scientist. 

That statement is exactly how I feel and many other women with this condition. It’s also the very reason I am coming out. People don’t like to talk about pain, they certainly don’t want to hear about another persons pain, and it’s further amplified when it involves a woman’s vulva (aka -vagina). A woman’s vagina is still thought of as purely sexual and not to be spoken of. In reality, a very small portion of it is used for sex. Our bladder output takes place through our vulva, menstration, and birth are all much larger functions involving the vagina than sex. To discuss a man’s prostate is perfecty acceptable, to joke about a man’s penis or testicals are all culturally okay, but to discuss a woman’s vagina is still taboo.  This is why we suffer in silence.

I have Vulvodynia

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11 Comments on “I have Vulvodynia ”

  1. Ma Vestibulodynie Et Moi says:

    Thanks for sharing Kimberly! I’ve had this condition since I was 20 years old (now I’m 25) and just like you, I find it embarrassing to announce to the world but at the same time, I feel like it’s time for us to bring awareness about it.
    Good luck through your journey and I hope you’ll find ways to heal or at least, to lessen the pain.

    Liked by 1 person

  2. rosiepearl says:

    Well done for being brave, I hope it brings you a sense of release like it did for me when I ‘came out’ with it! You might be interested in my blog as I talk about having vulvodynia a lot xx

    Liked by 1 person

  3. Latisha Zochert says:

    Thanks you so much for sharing. You are so brave and I hope your voice is heard by someone who is going through the same thing to give her hope, courage and the sense she is also not alone. God Bless! XOXOXO

    Liked by 1 person

  4. Nora says:

    Thank you for sharing and I hope you find relief soon. I also have vulvodynia and I’m only 20 and was diagnosed two years ago. I hope this goes away sooner than later not only for you but all of us women who have this terrible disease.

    Liked by 2 people

  5. Des says:

    Kudos Kimberley, for coming out & talking about this. I’ve had V & IC for nearly 40 years & all my family & friends know I have it & are very supportive to me.

    Liked by 1 person

    • Thanks Des. My closest friends have known and my side of the family has known. This is the first I’m sharing the diagnosis with my in-laws and many other dear friends. They’ve simply been told it’s chronic pelvic pain. It’s scary, but I need to be able to express myself openly and I can tell it makes many of my friends/family uncomfortable to talk about. So I’m hoping by blogging about it, I will find that release and purpose and those that are uncomfortable hearing about it, can choose not to read these particular posts.

      Like

  6. Good for you, my friend. If this helps in the processing and mental and emotionally healing then I say talk about it! Hugs. ❤️

    Liked by 1 person


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